I have a team of neurologists and other specialists who treat me for inoperable brain tumors, which have kept me from working for quite some time. I'm a mom of six and a Maymay of two granddaughters and one on the way. I was a nurse prior to this and am use to being the one helping others, but now I need the help. I'm constantly told I'm a medical mystery. I have had daily head pain all day and night for 14 months straight. They've called it chronic migraines, episodic, intractable and nonintractable headaches, because they are not sure what to call it and have yet to figure out how to treat it and stop my head pain. They've tried treatments ranging from head injections to infusion therapies and a ton of medications and continue to try more. I've been in and out of the hospital since this has started Oct. 2016 with a few lengthy stays and a ton of ER visits in between. Everything is trial and error thus far. I also suffer from dystonia, muscle spasms, cervicalgia, right sided weakness, spinal disformities, short and long term memory issues, major depressive disorder, anxiety disorder, TMJ, acid reflux, nephrolithiasos, protein C deficiency, factor X deficiency, factor Vlll deficiency, arthritis and most recently, TIA's and bilateral level ll lymphadenopathy. My husband is a seasonal worker and normally we are able to prepare for when he gets laid off, but he's had to carry us and there was no extra money to prepare with. We have been forced to put our home up for sale, but it hasn't sold yet. I already travel 45 minutes to multiple doctor visits and now I'm also going to be traveling back and fourth to the Cleveland Clinic in Ohio, which is yet another expense we weren't prepared for. We are hoping that they can figure me out and give us hope again. I know everyone has the holidays in mind, but anything anyone can help us with would be greatly appreciated. We still have kids at home to take care of. Against all odds we have survived thus far, but my health problems keep declining and we really need help to keep surviving. Thank you.