Please Give Baby Fahri a Second Chance of Life

Assalamualaikum warahmatullahi wabarakatuh.

My son Muhammad   Athif Fahri was diagnosed with a rare disease called SMA (Spinal   Muscular Atrophy) type 1, which expert doctors say 60% of babies who   suffer from the disease will not survive and reach the age of 2 years.   In Malaysia there are only a few cases so far and the average case in   the world is 10 thousand/50 cases. For now, there have 3 suitable   treatment in Malaysia and the medicine is too costly that can cure it.

At   the age of newborn up to 2 months, baby Fahri can still breathe on his   own and breastfeed. When he was 3 months old, baby Fahri's muscles got   weaker and the doctor inserted a milk tube and baby Fahri had to  breathe  using a breathing aid (non-invasive ventilator bipap). His  hands, feet  and all his muscles began to weaken day by day. Baby Fahri  often stops  breathing, his lips turn blue if the ventilator is opened  even for a  moment. If before I could take Fahri to bathe in the  bathroom, now I  only have to wipe baby Fahri on the bed. At the moment  baby Fahri still  can't lift his legs, head and hands well like other  babies.

Once   upon a time, baby Fahri stopped breathing and the spo2 oxygen reading   dropped to 60%. Upon arrival at the hospital, the doctor said that baby   Fahri's no hope for recover but, God still extended baby Fahri's life.   It turns out that baby Fahri is a very strong baby against his pain.  For  now, I go back and forth from Kuantan to Kuala Lumpur as the best   effort for my son. However, baby Fahri needs the medicine Risdiplam   which needs to be bought from abroad to help him stay strong. The   medicine is very expensive and costs RM40,400 per bottle. This medicine   also only lasts for 30 days per bottle and Fahri needs an estimated 7   bottles of medicine in total within a year.

I ask for prayers  from  all of you. Please help my child, help with the cost of his  treatment  so that this little child can also grow up and live a normal  life. I  really hope for your kindness to help baby Fahri.

This is  the test  we have to accept and as father and mother, we are trying our  best to  get treatment for baby Fahri, and we will not be able to do it  without  your help. Please pray that baby Fahri continues to be strong!